Comments on: What Happens When Brilliant Minds Focus On Improving The Quality of Patients' Lives? #CMSC16

By: Gilly Maddison

Gilly Maddison — Fri, 10 Jun 2016 04:50:47 +0000

Couldn't agree more - the wrong people are worshipped as 'heroes' in our society. The people who tackle the real issues to make life better usually do their work quietly and go largely unapplauded. In the last few years, I have written to the doctors and surgeons who have helped my parents with challenging illnesses because I think it is important to say thank you, I am glad you do what you do. Great coverage of the event Cathy - I was intrigued by the slide about Marijuana - am I right in thinking it implies that it isn't that good to use for MS? Or am I misunderstanding? I know people who swear by it for MS but then I know other people who have been using it as a recreational drug (in greater quantities I am guessing!) for years who now have problems. Tricky issue to tackle I suppose.

By: Janice Wald

Janice Wald — Wed, 08 Jun 2016 22:50:04 +0000

Hi Cathy,
Great to see you! I love what you wrote. True heroes are not always on the cover of TIME or people.
Thanks for the reminder.
Janice

By: 1010ParkPlace

1010ParkPlace — Wed, 08 Jun 2016 22:16:01 +0000

Your advocacy reminds me of my experiences when I had BreastCancerSisterhood.com. Like you, I got to know the scientists and researchers and other top advocates. It was an amazing look at the real progress being made in the cure for breast cancer, and I was tutored by Dr. Susan Love, one of the most respected and loved woman in the field. I pray MS research is closer than breast cancer, and I pray there are honest, above board groups, raising money for MS... unlike the Susan G. Komen Walk for the Cure foundation. Don't get me started about them! xoxox, Brenda

By: Doreen McGettigan

Doreen McGettigan — Wed, 08 Jun 2016 21:07:15 +0000

This looks like such an impressive event. Thank God there are so many professionals that are truly invested in making the lives of patients better and in finding a cure.
I am looking forward to reading more about your experience.

By: Cathy Lawdanski

Cathy Lawdanski — Wed, 08 Jun 2016 20:03:15 +0000

What a wonderful experience. I look forward to your future posts and learning more about the conference and what you learned. I love that it was HOPEFUL and that you saw a rainbow. And Clay Walker isn't too bad either!

By: Laurie@Musings, Rants & Scribbles

Laurie@Musings, Rants & Scribbles — Wed, 08 Jun 2016 19:28:12 +0000

Cathy, You're also a rock star when it comes to helping people. Have turned on a friend to your site and he likes it very much. He also has MS and he finds it helpful. Keep going.

By: Linda Wolff

Linda Wolff — Wed, 08 Jun 2016 17:48:16 +0000

What an incredible event! I can't wait to read about what you've learned. You are absolutely glowing in the photos!

By: Roz Warren

Roz Warren — Wed, 08 Jun 2016 16:23:06 +0000

I look forward to reading your upcoming posts about what you learned at this event. Sounds amazing and informative.

By: shifrachester@gmail.com

shifrachester@gmail.com — Wed, 08 Jun 2016 13:07:35 +0000

Thanks, Kymberly. I am really exhausted and have a 3 day writers conference tomorrow so I'm a bit, well, TIRED! That aside I did learn a lot and I will be writing about many things including relapses. So glad you are following along with me. It makes my ride feel so much better!!!!!

By: Kymberly

Kymberly — Wed, 08 Jun 2016 12:51:39 +0000

So do relapses matter? I am curious to find out in your future write ups. SOOoooooo glad you are learning, enjoying, holding up well! Hugs

By: Rena McDaniel

Rena McDaniel — Wed, 08 Jun 2016 10:52:20 +0000

It is so amazing to see all these intelligent people getting together to make the world a better place for people with ms. It really is inspirational.

By: Michelle

Michelle — Wed, 08 Jun 2016 10:48:55 +0000

Such an informative post and I'm so glad you have these conferences to get information, meet amazing people and help others with MS. So encouraging for many.