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	Comments on: Would I Still Be Me If I Wasn&#039;t Disabled?	</title>
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	<link>https://anempoweredspirit.com/would-i-be-the-same-person-if-i-wasnt-disabled/</link>
	<description>Cathy Chester, MS Advocate shares decades of wisdom</description>
	<lastBuildDate>Sat, 30 Dec 2023 20:55:19 +0000</lastBuildDate>
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		<title>
		By: shifrachester@gmail.com		</title>
		<link>https://anempoweredspirit.com/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23936</link>

		<dc:creator><![CDATA[shifrachester@gmail.com]]></dc:creator>
		<pubDate>Fri, 08 Aug 2014 14:54:56 +0000</pubDate>
		<guid isPermaLink="false">http://anempoweredspirit.clients.kidaweb.com/2014/05/19/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23936</guid>

					<description><![CDATA[I am praying for you Liset, and I sincerely thank you for sharing your story. I am with you, as the MS community is. Thanks so much for taking to time to let me get to know you a bit better. Big hugs.]]></description>
			<content:encoded><![CDATA[<p>I am praying for you Liset, and I sincerely thank you for sharing your story. I am with you, as the MS community is. Thanks so much for taking to time to let me get to know you a bit better. Big hugs.</p>
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		<title>
		By: liset Angela Garcia		</title>
		<link>https://anempoweredspirit.com/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23920</link>

		<dc:creator><![CDATA[liset Angela Garcia]]></dc:creator>
		<pubDate>Thu, 07 Aug 2014 20:50:25 +0000</pubDate>
		<guid isPermaLink="false">http://anempoweredspirit.clients.kidaweb.com/2014/05/19/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23920</guid>

					<description><![CDATA[Cathy,

&quot;Would I still be me if I weren&#039;t disabled?&quot; Cathy asks. I would think that I would regain myself. I know a lot of people that say that the found themselves with MS and some are even grateful for MS because they learned to be more compassionate, etc., etc. 

If I were honest I would have to say there is no way of sugar coating this I HATE MS. I have lost myself since being diagnosed and lets not get into the years that went by prior to diagnosis. Since diagnosis in 2009 symptoms began in 2006. I have had perhaps two instances of several days without MS symptoms. I have to say that I so enjoy those times and they are so painful when my SPMS come back. I live in the MS world of symptoms daily and it is not fun. My answer to Cathy would be that being disabled took &quot;me&quot; and my family.  I try but to accept this diagnosis and try extremely hard to try to get to know this new Liset and I must say I don&#039;t quiet like her.  This new me is someone that I more than likely would not want to befriend; she&#039;d dull, most of the time negative and lacks self confidence ALL characteristics that I would range high in my friendship list among many other things, 

I guess getting to know this new Liset. She isn&#039;t bad, but a hell of a long cry from pre-MS Liset. I think the worse part is now is every health issue is stricken to a NEW MS Symptom. Since last year I was having a sore throat I would tell me Dr. about it and his response was &quot;well you know MS patients sometimes as they progress have trouble swallowing&quot;. I switched primary care givers after many months of this. As it turns out in October I had an ultra sound on my thyroid gland although my T and T4 were normal. It came back I had quiet a big nodule on the left side of my thyroid. I let it go so many other things go on that I just thought it would go away.

 All the woman in my family have some sort of thyroid problem. In the past month I have had a nuclear medicine uptake for the thyroid and seen two specialist. As it turns out the nodule has consumed the complete thyroid and it is what is called a &quot;cold nodule&quot; which 80% of the time is cancerous. Yesterday I went in for what should had been a thin need biopsy and the ENT said he could not perform the biopsy because the nodule has grown and hardened and he was afraid it would not get any return for a pathological biopsy through a thin needle. IF this would had been caught on time it could had tried to of been controlled perhaps with medication and the thin needle biopsy as it turns out I am headed to the hospital to see what fate awaits me. Guys and gals don&#039;t leave your health in the hands of others, insist on more screening when you don&#039;t feel well. Not all is MS related. Cathy thank you for your well wishes and I do remember the days of RRMS..they were good ones too bad SPMS is what fills my days now, ♥ Liset]]></description>
			<content:encoded><![CDATA[<p>Cathy,</p>
<p>"Would I still be me if I weren't disabled?" Cathy asks. I would think that I would regain myself. I know a lot of people that say that the found themselves with MS and some are even grateful for MS because they learned to be more compassionate, etc., etc. </p>
<p>If I were honest I would have to say there is no way of sugar coating this I HATE MS. I have lost myself since being diagnosed and lets not get into the years that went by prior to diagnosis. Since diagnosis in 2009 symptoms began in 2006. I have had perhaps two instances of several days without MS symptoms. I have to say that I so enjoy those times and they are so painful when my SPMS come back. I live in the MS world of symptoms daily and it is not fun. My answer to Cathy would be that being disabled took "me" and my family.  I try but to accept this diagnosis and try extremely hard to try to get to know this new Liset and I must say I don't quiet like her.  This new me is someone that I more than likely would not want to befriend; she'd dull, most of the time negative and lacks self confidence ALL characteristics that I would range high in my friendship list among many other things, </p>
<p>I guess getting to know this new Liset. She isn't bad, but a hell of a long cry from pre-MS Liset. I think the worse part is now is every health issue is stricken to a NEW MS Symptom. Since last year I was having a sore throat I would tell me Dr. about it and his response was "well you know MS patients sometimes as they progress have trouble swallowing". I switched primary care givers after many months of this. As it turns out in October I had an ultra sound on my thyroid gland although my T and T4 were normal. It came back I had quiet a big nodule on the left side of my thyroid. I let it go so many other things go on that I just thought it would go away.</p>
<p> All the woman in my family have some sort of thyroid problem. In the past month I have had a nuclear medicine uptake for the thyroid and seen two specialist. As it turns out the nodule has consumed the complete thyroid and it is what is called a "cold nodule" which 80% of the time is cancerous. Yesterday I went in for what should had been a thin need biopsy and the ENT said he could not perform the biopsy because the nodule has grown and hardened and he was afraid it would not get any return for a pathological biopsy through a thin needle. IF this would had been caught on time it could had tried to of been controlled perhaps with medication and the thin needle biopsy as it turns out I am headed to the hospital to see what fate awaits me. Guys and gals don't leave your health in the hands of others, insist on more screening when you don't feel well. Not all is MS related. Cathy thank you for your well wishes and I do remember the days of RRMS..they were good ones too bad SPMS is what fills my days now, ♥ Liset</p>
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		<title>
		By: shifrachester@gmail.com		</title>
		<link>https://anempoweredspirit.com/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23370</link>

		<dc:creator><![CDATA[shifrachester@gmail.com]]></dc:creator>
		<pubDate>Mon, 02 Jun 2014 15:16:12 +0000</pubDate>
		<guid isPermaLink="false">http://anempoweredspirit.clients.kidaweb.com/2014/05/19/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23370</guid>

					<description><![CDATA[Thank you for sharing your important story, Karen. We all have to make adjustments according to our abilities. Some are more difficult than others.  But we&#039;ll keep trying to do the best we can.

Thanks so much for leaving your thoughts~
Cathy]]></description>
			<content:encoded><![CDATA[<p>Thank you for sharing your important story, Karen. We all have to make adjustments according to our abilities. Some are more difficult than others.  But we'll keep trying to do the best we can.</p>
<p>Thanks so much for leaving your thoughts~<br />
Cathy</p>
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		<title>
		By: Karen		</title>
		<link>https://anempoweredspirit.com/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23365</link>

		<dc:creator><![CDATA[Karen]]></dc:creator>
		<pubDate>Fri, 30 May 2014 12:40:18 +0000</pubDate>
		<guid isPermaLink="false">http://anempoweredspirit.clients.kidaweb.com/2014/05/19/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23365</guid>

					<description><![CDATA[Before my disabiliy, I was a park ranger at the North Rim of the Grand Canyon. I stood at the entrance station 10 hours a day, greeting visitors, or in the campground checking campers in. I hiked with friends on my days off, or worked on sewing projects and quilts. 
I was a pretty active person and lived in an RV full time. 

Now that I am disabled, I have to use those carts at the grocery store to get around, and rarely go anywhere because it exhausts me to do so. It hurts to sew, which was my passion before. I am very slowly getting used to the new me, and trying my best to be patient with myself while I find new things to do that can make me feel productive again. 

Thanks for your post, it is very inspiring.]]></description>
			<content:encoded><![CDATA[<p>Before my disabiliy, I was a park ranger at the North Rim of the Grand Canyon. I stood at the entrance station 10 hours a day, greeting visitors, or in the campground checking campers in. I hiked with friends on my days off, or worked on sewing projects and quilts.<br />
I was a pretty active person and lived in an RV full time. </p>
<p>Now that I am disabled, I have to use those carts at the grocery store to get around, and rarely go anywhere because it exhausts me to do so. It hurts to sew, which was my passion before. I am very slowly getting used to the new me, and trying my best to be patient with myself while I find new things to do that can make me feel productive again. </p>
<p>Thanks for your post, it is very inspiring.</p>
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		<title>
		By: shifrachester@gmail.com		</title>
		<link>https://anempoweredspirit.com/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23331</link>

		<dc:creator><![CDATA[shifrachester@gmail.com]]></dc:creator>
		<pubDate>Thu, 29 May 2014 06:33:30 +0000</pubDate>
		<guid isPermaLink="false">http://anempoweredspirit.clients.kidaweb.com/2014/05/19/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23331</guid>

					<description><![CDATA[Elizabeth, I am glad to hear that MS propelled another person to do great things in paying it forward to others. Thank you for sharing your story, and good luck to you on your quest toward wellness and helping others do the same.

Best always~
Cathy]]></description>
			<content:encoded><![CDATA[<p>Elizabeth, I am glad to hear that MS propelled another person to do great things in paying it forward to others. Thank you for sharing your story, and good luck to you on your quest toward wellness and helping others do the same.</p>
<p>Best always~<br />
Cathy</p>
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		<title>
		By: Elizabeth Yarnell		</title>
		<link>https://anempoweredspirit.com/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23330</link>

		<dc:creator><![CDATA[Elizabeth Yarnell]]></dc:creator>
		<pubDate>Wed, 28 May 2014 18:59:12 +0000</pubDate>
		<guid isPermaLink="false">http://anempoweredspirit.clients.kidaweb.com/2014/05/19/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23330</guid>

					<description><![CDATA[Loved your beautiful post as this is something I think about often. My 1999 diagnosis with MS changed my life and gave me a passion, an education, a career, and a mission to help others feel better through what they eat. Learning how to manage this disease has empowered me in ways I never could have imagined. Getting diagnosed has shaped the course of my life irrevocably and, ironically, encouraged me to become a healthier person both physically and emotionally.]]></description>
			<content:encoded><![CDATA[<p>Loved your beautiful post as this is something I think about often. My 1999 diagnosis with MS changed my life and gave me a passion, an education, a career, and a mission to help others feel better through what they eat. Learning how to manage this disease has empowered me in ways I never could have imagined. Getting diagnosed has shaped the course of my life irrevocably and, ironically, encouraged me to become a healthier person both physically and emotionally.</p>
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		<title>
		By: shifrachester@gmail.com		</title>
		<link>https://anempoweredspirit.com/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23318</link>

		<dc:creator><![CDATA[shifrachester@gmail.com]]></dc:creator>
		<pubDate>Sat, 24 May 2014 07:09:02 +0000</pubDate>
		<guid isPermaLink="false">http://anempoweredspirit.clients.kidaweb.com/2014/05/19/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23318</guid>

					<description><![CDATA[Jean,

Good for you on remaining positive despite the ups and downs of health.  Thanks so much for sharing your story with me.

Best always~
Cathy]]></description>
			<content:encoded><![CDATA[<p>Jean,</p>
<p>Good for you on remaining positive despite the ups and downs of health.  Thanks so much for sharing your story with me.</p>
<p>Best always~<br />
Cathy</p>
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		<title>
		By: Jean		</title>
		<link>https://anempoweredspirit.com/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23316</link>

		<dc:creator><![CDATA[Jean]]></dc:creator>
		<pubDate>Fri, 23 May 2014 13:10:10 +0000</pubDate>
		<guid isPermaLink="false">http://anempoweredspirit.clients.kidaweb.com/2014/05/19/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23316</guid>

					<description><![CDATA[I don&#039;t consider myself disabled. I&#039;m definitely physically different than I was before the life threatening infection that left me with a 12 inch zipper down the middle of my back, learning to walk again, and a wonked out autonomous nervous system 12 years ago. 

The takeaways:

1. Perspective. The outcome of my illness depended on so many different variables. A change to anyone of those variables and the whole situation could&#039;ve resolved in a drastically different way: I could&#039;ve been a paraplegic. I could&#039;ve passed. I did neither. I recovered. I&#039;m not the same person mentally or physically. Everyone kept saying &quot;back to normal.&quot; What they didn&#039;t realize is there&#039;s no &quot;back&quot; to normal. There&#039;s just a new normal. Given the alternatives, I&#039;m happy I got a new normal. A new normal is better than no normal at all.

2. Serendipity. I had no control over the variables in my situation. The condition, the diagnosis, the surgeon on call, the result... All came together in a lucky combination. Everyone involved in my recovery forgot to tell me that they were all telling each other I wasn&#039;t supposed to walk again. Good thing, too. I do have to admit that I did wonder why they kept parading doctors into my room for demonstrations of me standing, balancing, walking in a straight line, standing on my toes, etc. I pretty much figured out what no one had told me by the 5-6 &quot;see what she&#039;s doing!?!&quot; demonstration.

3. Roll with it. Even the stuff that sucks about having a physical condition becomes part of every day life after a while. Your body functions just happen to be different than they once were, or different than 80% of the other people you know. There&#039;s more important stuff to move on to. yeah, it sucks in the minute, but it&#039;s only that minute. At least there will be a minute from now. 10 minutes later. 20 minutes from now.

12 years ago I put 2 dogs through therapy dog international testing 2 days before my medical emergency. Today I&#039;m sitting in my home office with my 14 month old puppy at my feet.

You know what&#039;s really cool? I get to have a 14 month old puppy at my feet.

I&#039;m 12 years older, a bit slower, but less inclined toward face plants than I was even 5 years ago, and I get to take a 14 month old puppy to agility classes where I run with the dog...

It sure isn&#039;t the same. But I&#039;ll take it.]]></description>
			<content:encoded><![CDATA[<p>I don't consider myself disabled. I'm definitely physically different than I was before the life threatening infection that left me with a 12 inch zipper down the middle of my back, learning to walk again, and a wonked out autonomous nervous system 12 years ago. </p>
<p>The takeaways:</p>
<p>1. Perspective. The outcome of my illness depended on so many different variables. A change to anyone of those variables and the whole situation could've resolved in a drastically different way: I could've been a paraplegic. I could've passed. I did neither. I recovered. I'm not the same person mentally or physically. Everyone kept saying "back to normal." What they didn't realize is there's no "back" to normal. There's just a new normal. Given the alternatives, I'm happy I got a new normal. A new normal is better than no normal at all.</p>
<p>2. Serendipity. I had no control over the variables in my situation. The condition, the diagnosis, the surgeon on call, the result... All came together in a lucky combination. Everyone involved in my recovery forgot to tell me that they were all telling each other I wasn't supposed to walk again. Good thing, too. I do have to admit that I did wonder why they kept parading doctors into my room for demonstrations of me standing, balancing, walking in a straight line, standing on my toes, etc. I pretty much figured out what no one had told me by the 5-6 "see what she's doing!?!" demonstration.</p>
<p>3. Roll with it. Even the stuff that sucks about having a physical condition becomes part of every day life after a while. Your body functions just happen to be different than they once were, or different than 80% of the other people you know. There's more important stuff to move on to. yeah, it sucks in the minute, but it's only that minute. At least there will be a minute from now. 10 minutes later. 20 minutes from now.</p>
<p>12 years ago I put 2 dogs through therapy dog international testing 2 days before my medical emergency. Today I'm sitting in my home office with my 14 month old puppy at my feet.</p>
<p>You know what's really cool? I get to have a 14 month old puppy at my feet.</p>
<p>I'm 12 years older, a bit slower, but less inclined toward face plants than I was even 5 years ago, and I get to take a 14 month old puppy to agility classes where I run with the dog...</p>
<p>It sure isn't the same. But I'll take it.</p>
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		<title>
		By: shifrachester@gmail.com		</title>
		<link>https://anempoweredspirit.com/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23311</link>

		<dc:creator><![CDATA[shifrachester@gmail.com]]></dc:creator>
		<pubDate>Thu, 22 May 2014 09:49:25 +0000</pubDate>
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					<description><![CDATA[Thank you, Carol! That means a great deal to me coming from you. xo]]></description>
			<content:encoded><![CDATA[<p>Thank you, Carol! That means a great deal to me coming from you. xo</p>
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		<title>
		By: Carol April		</title>
		<link>https://anempoweredspirit.com/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23310</link>

		<dc:creator><![CDATA[Carol April]]></dc:creator>
		<pubDate>Thu, 22 May 2014 00:17:26 +0000</pubDate>
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					<description><![CDATA[So beautifully written, Cathy --- you are a source of inspiration and wisdom to us all! xo]]></description>
			<content:encoded><![CDATA[<p>So beautifully written, Cathy --- you are a source of inspiration and wisdom to us all! xo</p>
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		<title>
		By: shifrachester@gmail.com		</title>
		<link>https://anempoweredspirit.com/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23305</link>

		<dc:creator><![CDATA[shifrachester@gmail.com]]></dc:creator>
		<pubDate>Wed, 21 May 2014 11:56:40 +0000</pubDate>
		<guid isPermaLink="false">http://anempoweredspirit.clients.kidaweb.com/2014/05/19/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23305</guid>

					<description><![CDATA[I am so sorry you have to deal with that whammy mixture, Angela. That must be quite difficult, so a new normal is what is needed for you (and us) every single day, eh?  Well, we are here for each other, friend!]]></description>
			<content:encoded><![CDATA[<p>I am so sorry you have to deal with that whammy mixture, Angela. That must be quite difficult, so a new normal is what is needed for you (and us) every single day, eh?  Well, we are here for each other, friend!</p>
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		<title>
		By: Angela McKeown Momopolize		</title>
		<link>https://anempoweredspirit.com/would-i-be-the-same-person-if-i-wasnt-disabled/#comment-23285</link>

		<dc:creator><![CDATA[Angela McKeown Momopolize]]></dc:creator>
		<pubDate>Wed, 21 May 2014 02:19:20 +0000</pubDate>
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					<description><![CDATA[This is such a wonderful post Cathy!  And one I needed to hear right now. I have Lupus and chronic problems with Lyme disease and the past year has been a tough one (tougher then normal I should say).  Thank you for putting into words the thoughts I need to get back in my head!]]></description>
			<content:encoded><![CDATA[<p>This is such a wonderful post Cathy!  And one I needed to hear right now. I have Lupus and chronic problems with Lyme disease and the past year has been a tough one (tougher then normal I should say).  Thank you for putting into words the thoughts I need to get back in my head!</p>
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