An Empowered Spirit Blog Post

What Happens When Brilliant Minds Focus On Improving The Quality of Patients' Lives? #CMSC16

By Cathy Chester on June 8, 2016

I stepped into the lobby of the Gaylord Hotel, walking along their red carpet that led me past a 19 story glass atrium wall overlooking National Harbor on the banks of the Potomac. With every step my heart beat faster, knowing what was about to begin.

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I was getting closer to meeting the brilliant people I call my rock stars, the ones who are committed to making a difference in the lives of those living with Multiple Sclerosis.

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Signs of hope and inspiration about MS were displayed all around the Gaylord Hotel

In a previous post I wrote that my rock stars are not on the covers of TIME or Vanity Fair. (See My Heroes Are Not on the Cover of PEOPLE Magazine) And the red carpet I'm writing about is not the one where the Fashion Police critique gowns and hairstyles at the Oscars. No, no, no. The red carpet I'm describing is the one that was walked on by over 2,000 medical professionals who work to improve the lives of the MS community.

They are my heroes.

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This woman - this extraordinary lady - inspired me and countless other patients to live our lives fully and out loud despite our diagnosis. My life would not have been the same without June Halper.

The 30th annual Consortium of Multiple Sclerosis Centers (CMSC) convened last week at the Gaylord National Resort and Convention Center. It's always an honor to attend this event. I get the chance to hobnob with top healthcare professionals and researchers from around the globe who are there to offer the latest information, strategies and areas of exploration for attendees to learn and bring back to their practice.

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Two of the many slides presented at CMSC

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Three more slides about important topics

From early morning through early evening each presentation has a united theme: How to improve the lives of MS patients.

One word, more than any other, was spoken: Hope.

But what exactly goes on at this conference? Loyal readers hear me talk about it but I'm guessing they have a vague idea what it's all about. And I don't blame them. Sometimes it's hard for me to remember EVERYTHING that takes place because it's so large, with so much to absorb, that it's almost impossible to grasp the full picture.

In the next few weeks I'll be writing about what I learned at the sessions I attended.  I'll also be sharing interviews I conducted with some incredibly dedicated professionals.

Here's a quick look at a portion of what happened:

Daily Press Conferences - As part of the press corps I had the unique opportunity to be in the Press Room to meet key speakers prior to their lectures.

(Examples are Dr. Fred D. Lublin: Do Relapses Really Matter?; Susan Bennett, PT, DPT, EdD, NCS, MSCS: Current Trends in Rehabilitation; Clay Walker, musician and patient discussing his 20 year journey with MS and his neurologist Dr. Jerry Wolinsky: Milestones in MS - Mostly Missed When They Happened; Dr. Jack Antel: Multiple Sclerosis and Can the Damage Be Undone?; Francisco Quintana: How T Cells and B Cells Work Together)

What's it All About? There are pages and pages of lectures and symposiums to choose from, plus professionals can obtain CME (Continuing Medical Education) credits that are offered through CMSC.

Topics for the sessions range from "Progressive MS: What We Now Know" and "Viruses in MS: PML and Beyond" to "Integrating Lifestyle Factors and Unconventional Medicine into MS Clinical Care" and "Yoga Moves MS: Awakening Inspiring and Empowering Lives."

The list is impressive and I overheard many attendees mention how inclusive CMSC is by offering such a wide array of subjects.

Exhibit Hall: There were 72 exhibitors that included pharmaceutical companies, MS organizations, MS-related publishing companies, MS databases and registries, pharmacy innovations, apps, websites and unique online programs for MS patients, cooling and mobility manufacturers and information about adaptive yoga classes.

A special shoutout to the work being done by The Veterans Affairs Multiple Sclerosis Center of Excellence and United Spinal Association.

Three booths I enjoyed speaking with were MS-GO Event Calendar (a free service for local events, support groups and meetings. I am signed up in New Jersey and receive emails listing local events), Cure Fund (a patient advocacy organization) and MotherToBaby (a non-profit organization answering questions about medications and pregnancy).

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A few of the booths in the Exhibit Hall that are part of CMSC

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Pharmaceutical companies in The Exhibit Hall

Young Scholars: It was once again my great pleasure to attend The Foundation of the Consortium of Multiple Sclerosis Centers (FCMSC) luncheon to meet bright, articulate medical students, rehabilitation therapy trainees, resident scholars and fellows who are the "Workforce of the Future." (See last year's post "Holding the Future of Multiple Sclerosis Care in Their Young Hands")

I spoke to a few about their work and they were impressive. The FCMSC works hard to encourage medical students to choose MS as their main focus. Fingers crossed!

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One of the many posters at the Foundation luncheon. Scholars were on hand to explain their work. You can see why! These young people are extremely gifted and talented.

And if you think we didn't have any fun, think again! We were serenaded with a Clay Walker concert, plus a few famous people stopped by (ahem) to help us celebrate CMSC's 30th Anniversary.

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June Halper presenting an award to musician Clay Walker for thriving for 20 years with MS. A few of the ladies in the audience swooned at this kiss! CMSC thanks Clay for being an important part of our event and entertaining us for so many years.

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Just a couple of guys hanging out with us! Abe Lincoln and Michelle Obama were there too.

This is a small portion of what took place at the annual meeting. In the next few weeks I'll be writing more about it. In the meantime if you're interested in learning more about the CMSC, or if you'd like to find articles, videos, webinars or any educational activities that take place please click here.

END NOTE: I thought it apropos that a beautiful rainbow appeared on the last day. Heavenly.brilliant

 

 

 

Author

Cathy Chester

Comments

  1. what an amazing opportunity and it must be so encouraging to see such intellect and technology being put towards finding a cure and ways to improve the lives of those with MS - btw you looked fabulous in the pics x

  2. It sounds so wonderful. It is heartening to know there is good stuff on the horizon for people with MS. Hearing the best of the best talk about a subject so close to you must have been the most amazing experience. So glad you had this opportunity and I look forward to hearing more!

  3. Inspiring. It's great to think that so many people are working on improving life for my friends who are dealing with MS. (And you do look terrific in those photos. And Kennedy and Obama don't look too bad either.) (Is there a MS connection between these Presidents and MS that I'm not aware of? Or was it just about a fun photo opp?)

  4. Such an informative post and I'm so glad you have these conferences to get information, meet amazing people and help others with MS. So encouraging for many.

  5. So do relapses matter? I am curious to find out in your future write ups. SOOoooooo glad you are learning, enjoying, holding up well! Hugs

  6. What a wonderful experience. I look forward to your future posts and learning more about the conference and what you learned. I love that it was HOPEFUL and that you saw a rainbow. And Clay Walker isn't too bad either!

  7. This looks like such an impressive event. Thank God there are so many professionals that are truly invested in making the lives of patients better and in finding a cure.
    I am looking forward to reading more about your experience.

  8. Your advocacy reminds me of my experiences when I had BreastCancerSisterhood.com. Like you, I got to know the scientists and researchers and other top advocates. It was an amazing look at the real progress being made in the cure for breast cancer, and I was tutored by Dr. Susan Love, one of the most respected and loved woman in the field. I pray MS research is closer than breast cancer, and I pray there are honest, above board groups, raising money for MS... unlike the Susan G. Komen Walk for the Cure foundation. Don't get me started about them! xoxox, Brenda

  9. Couldn't agree more - the wrong people are worshipped as 'heroes' in our society. The people who tackle the real issues to make life better usually do their work quietly and go largely unapplauded. In the last few years, I have written to the doctors and surgeons who have helped my parents with challenging illnesses because I think it is important to say thank you, I am glad you do what you do.

    Great coverage of the event Cathy - I was intrigued by the slide about Marijuana - am I right in thinking it implies that it isn't that good to use for MS? Or am I misunderstanding? I know people who swear by it for MS but then I know other people who have been using it as a recreational drug (in greater quantities I am guessing!) for years who now have problems. Tricky issue to tackle I suppose.

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