Sometimes when I’m busy working on an article or doing research for my personal use I come across a piece of news, an interesting tidbit or a website or blog I think deserves extra attention. I want to share what I found with my readers but I’m not quite sure how to present the information in a cohesive way. The list isn’t linear, they’re a conglomeration of facts and ideas that are interesting and worth noting. Read on to see what I found.
Hope Beyond Illness - A Guide to Living Well with a Chronic Condition by Shulamit Lando is a gripping memoir. Shulamit Lando recounts her experience with Multiple Sclerosis, MS, a serious, debilitating, and allegedly incurable disease. She describes how she refused to let conventional medicine dictate its depressing message to her and how she used her body and her mind as a healing laboratory to combat the illness. After every chapter, valuable tips give you the most effective tools from different therapeutic approaches. Through her guidance and experience, you learn many ways to deal with overwhelming feelings and be able to allow calm and healing into your life. (Taken from Amazon.com)
NOTE: The views of this author are not necessarily the views of AES.
Shift.ms is an informative, independent and supportive social network that was founded by people living with MS for people with MS. They help thousands of people around the globe. Recently Shift.ms began offering MS Reporters, videos of citizen journalists who are trained and matched with experts and influencers to conduct interviews of special interest to the MS community.
I am enamored with Shift.ms, and thought their MS Reporter Aoife did a fine job interviewing Professor Helmut Butzkueven, Joint Director of the MS Service at The Royal Melbourne Hospital and Director of the MS Service at Box Hill Hospital, Melbourne, Australia on how people with MS can more effectively communicate their needs to their neurologist. This is a topic that comes up quite often so I thought I’d offer this interview here.
Do you have a question you'd like answered by an MS Expert? Click here.
Bladder issues? It can be quite difficult living with urinary urgency, but discussing it? Yikes! Peeing here, peeing there, accidentally peeing everywhere is embarrassing, mortifying, humiliating, take your pick.
Here are the pearly words of Dave Bexfield as he lays out a few rules he lives by when it comes to urinary urgency. Using his usual good sense of humor this video will entice you to check out his blog, ActiveMSers: Staying active with multiple sclerosis.
The Dream Team of neurologists at a Q&A answering our questions! Here’s an interesting roundtable discussion, Compass to Care, an educational seminar produced by MS Views and News. Moderated by MSVN founder Stuart Schlossman, this roundtable was a Q&A with three highly-respected neurologists, Dr. Daniel Kantor, Dr. Aaron L. Boster and Dr. Samuel F. Hunter. They answered such questions as:
MS Views and News - I’ve known Stu Schlossman, founder of MSVN, for a long time and I've watched him work tirelessly to create his educational platform that’s helped many MS patients and their loved ones in a variety of ways. I highly recommend taking a look at what MSVN has to offer :
MS Views and News Programming
The mission of MS Views and News is to provide education, advocacy, and services which empower and enhance the quality of life for the MS community. We have been able to measure the effectiveness of our programs through thousands of program evaluations and communicative emails and feedback from people living with MS and care partners stating that our programs have directly impacted them in positive ways.
MS Views and News receives financial support through charitable donations which support ongoing programming and services:
Live MS Educational Programming: MS Views and News provides free live educational events ( averaging 42 yearly) open to the MS community nationwide. These empowering educational programs bring multidisciplinary MS care providers together in one setting to bring our audience up to date and needed information about living strong and informed with MS.
eNewsletter: The MS Views and News Newsletter- "MS in the News" is received by over 25,000 readers monthly and provides comprehensive up to date information keeping our audience informed and engaged. A current view of this e-Newsletter is found here.
Online Learning: Live online webinars serving over 300 individuals impacted by MS monthly. Our live interactive online webinars allow the MS community to learn, share and interact with MS professionals from the comfort of their home.
The MS Views and News YouTube Learning Channel: With over 180,000 views to date MS Views and News continues to professionally video record the live educational events. This archive of educational topics provides our audience with an A-Z of living with MS. From symptoms management, pediatric MS and family life to the newest breakthroughs in research and medications, the Learning Channel brings it to our worldwide audience.
Social Media community: Through Facebook, Twitter and Instagram MS Views and News serves as a vibrant hub engaging the MS community. Together thousands receive daily uplifting posts and updates in the MS world.
To support the work of MS Views and News, please click here.
You may also want to read:
Feeling Invisible Doesn't Have to be a Lifelong Battle
The Female Painter Who Faces Life's Challenges Through Her Art
That’s it for now! I’ll be back again with more tidbits for you. In the meantime please let me know what you think about what I’ve offered here - I’d really like to know! Have a great, empowering day.
Great post, Cathy. As always, it's informative and optimistic. Your attitude is catching.
Wow! What incredible information. I wish there was information like this for all diseases. Hey, forget disease, how about healthy. Great site and great information Cathy. You're a gem.
Great blog! Thank you for sharing such helpful info complete with links & videos. Great resources here and I especially related to the wonky bladder video. We’re all in this together right?
My Aunt is the one who told me to check out your blog. Her step daughter is a friend of yours. I have been fighting M.S . for four years now. Had it a lot longer but did not know it. I was born with cerebral palsy. Started having problems in my early 30. The Medical field just chalked it up to my C.P. Four years ago I got real sick that is when I was diagnosed with MS.
I was wondering if you have used or herd about this great walking device called an Alinker. It real has changed my life. A Lady by the name Barbara Alinker invented it. It is totally amazing.