The BEAST that's lived in my body for more than half of my life started to erupt over the last few years in unsettling and disruptive ways. The odd thing is that, for the first time in my MS life, I'm experiencing the denial phase that typically begins after a diagnosis.
It's been a wake-up call to come face-to-face with the harsh reality of MS, possible progression, and aging.
Life never follows a straight line.
When I first learned I had MS I hadn't a clue what was in store for me, the unexpected detours and undeniable disappointments that could lie ahead.
When you're young, and there's no internet to provide millions of reasons to worry about your future, you think you're invincible despite a medical condition.
What probably saved me from any mental hiccups was my fertile imagination, and the ability to jump into a daydream whenever I needed an escape.
Real-life problems were something that happened to others. I felt safe and healthy inside my self-created cocoon.
Ah, youth.
I was fortunate to have two loves I could lean on for support.
One was an obsession with black and white films. Their Hollywood happy endings and bigger-than-life actors provided me with a haven. They'd transport me to places I never wanted to leave.
The second love was immersing myself in nature, spending hours and hours in the natural world of animals and plants.
Growing up in a home surrounded by woods I fell in love with the nighttime sound of crickets, watching the change of seasons, and the perfection of wildlife outside my door.
Nature taught me crucial lessons that still serve me well:
Classic films and the natural world are like old reliable friends who always have your back.
I wish I could bottle them as a panacea for the world's problems.
"If there's a single lesson that life teaches us, it's that wishing doesn't make it so." ~Lev Grossman, The Magician
As I look back at my younger self, a wide-eyed twenty-something living with a disease, I realize how much I've changed.
Time has taught me the value of setting boundaries, ending toxic relationships, accepting truths, traveling through grief and pain, and struggling with the loneliness that comes with chronic illness.
It's a gut punch being unable to keep up with the rest of the world.
As a teenager, I felt a kinship with Henry David Thoreau after reading "Walden" about simple living in natural surroundings. He wrote his "life in the woods" while living in a cabin he built near Walden Pond in Massachusetts.
I'd kiss Thoreau on the cheek if I could thank him for all he's meant to me.
"Although truth can be found in literature, it can also be found in nature." ~ Henry David Thoreau
Living with MS has never been easy but as I passed my sixtieth birthday, and felt overwhelming personal and physical changes, I saw life through a clearer lens.
Like a butterfly emerging from a cocoon, my metamorphosis was eye-opening and deeply challenging.
"Life is a succession of lessons which must be lived to be understood." ~Helen Keller
The BEAST of MS can be painful, unpredictable, and disturbing.
As hard as it is I still believe there's a silver lining to any situation if you look for it. What was mine?
The silver lining was realizing it was about time to start preparing for the inevitability of life's ups and downs. I decided to begin by:
Devoting myself to the list below is something that's within my control.
Now that's a silver lining!
(NOTE: I have no affiliation of any kind with the links below. I provide them for your enjoyment and hope you'll take the time to explore them for yourself) :
Inner Timer app
Cory Muscara
Mindfulness.com app
Tapping
The Tapping Solution app
Chair yoga
Cornell Lab Bird Cam - Talk about a calming experience! Watch LIVE cams from around the world for "a virtual window into the natural world of birds." (We watch these on YouTube)
Here's when BEAUTY and the BEAST collide!
With so much going on in our lives my wonderful husband instinctively knew how to lift my spirits. After 34 years of marriage, we can read each other's hearts.
He took me on a trip to the New York Botanical Gardens and their gorgeous (a/k/a BEAUTY) orchid show!
It was absolutely ah-may-zing. A completely magical day.
The BEAUTY was in the flowers, and the love, that I felt that day. I will never forget how special it made me feel.
Find something big, small, or anything in between that puts a smile on your face. Whatever it is it's what's right for YOU.
You. Deserve. Something. Special. Today. And. Always.
MS is only a part of who we are. Sprinkle the rest of your life with love and laughter.
We are in this together.
Now on with the show! Sit back and drink in these beauties that I posted just for you.
I loved this post so much and took a similar tone for my 47th in January. It's amazing how the aging process works on us with illness. Sometimes I feel like my heart is 25 and my body is 90 and everything else is where it should be, but I totally agree that none of it is linear! It's a roller coaster every day!
Lovely orchids. I LOVE Vanda Princess Orchids. Taiwan is known as The Kingdom of Orchids because they grow everywhere here.
Cathy Thank you for your heartfelt words and beautiful pictures. just what i needed this morning.
Beautiful post Cathy! I always sought escape into nature, and was raised on old movies too! It gets a little hard in Anaheim, with a concrete jungle surrounding me, but I find my quiet spots and listen to the birds. I really also identified with the delayed denial. I took every punch MS gave me and worked through it, any way I could. But at 38 I don’t bound back quite as well as I did in my 20s! Here’s to the search of Beauty, within and outside the Beast! (Did you ever see the black and white French version; La Belle et la Bette? I think you would really like it.) 🧡😊
the gorgeous flowers create a feeling of magic, however, I do think you create more magic being you
Cathy,
You never fail to inspire!
Thank you.
Your unbeatable spirit doesn't come by chance, only by intention. Kudos.
I love the glorious images of all the flowers!!! It's as if one's there ...
And Helen Keller was right about life being a succession of lessons that can only be learned through living them (tough and grand as they come.)
Take care.
Exquisite! I could smell all the aroma of a flower garden. Thanks for sharing.
I’m always moved by your words….your strength…and your beautiful heart. Thank you for making my morning.
Beautiful post. Glad you were able to go to the Botanical Gardens. At this age sometimes slowing down isn’t such a bad thing. In fact it may help us appreciate more. Be well. 🙏❤️🙏
You have such a beautiful way of putting life in perspective Cathy. I always am blessed by your writings. Hold on to what is precious and close the door to the rest. Love and Hugs, Bo
WOW - your words and your photos, beautiful and inspiring!
Thankyou so much for posting these absolutely beautiful orchids. You have added happiness to my dbay. Appreciated so much.
My pleasure! I'm glad you enjoyed them. Cathy