An Empowered Spirit Blog Post

MS, Aging, and Why This Milestone Birthday Matters

By Cathy Chester on February 6, 2024

As I approach my sixty-fifth birthday, I'm taking time to reflect on the significance of this milestone. I consider it a personal victory, having survived multiple sclerosis and other complex challenges over the decades. The song "I'm Still Here" by Stephen Sondheim has been playing in my head, reminding me that I've been through a lot, and I'm still standing where I've always been. HERE.

"Good times and bum times, I've seen them all, and, my dear, I'm still here." 

MS

 

When my first neurologist explained I had something called multiple sclerosis, he ended the consult by adding that, on average, people with the disease live seven years less than the general population. Gulp. Ordinarily, that last piece of information should have horrified me, but this totally naive twenty-eight-year-old pushed it aside, like Scarlett O'Hara, to think about tomorrow. I was having too much fun with no time to stop for any illness.

Fast forward to the present, and I thought about that neurologist's words about life expectancy, and you know what? F*** him. I have science and thirty-seven years of solid MS research and clean living on my side. So, I'm celebrating this birthday and every birthday to follow!

It's amazing how much progress has been made in the field of Multiple Sclerosis (MS) research since my diagnosis in 1986. With the availability of dozens of MS medications and improved diagnostic methods, the statistics regarding life expectancy are constantly evolving. Today, I feel more optimistic than ever before. I'm older and wiser now, and I know that dwelling on what I was told about MS and life expectancy all those years ago is not helpful. Instead, I focus on the positive changes that have been made and the possibilities for the future.

Each day is a gift; we should never take that for granted. I'm determined to focus on what's important and keep moving forward by working on my bucket list items enthusiastically and joyfully. YEAH!

That's reason enough to rejoice as I live a life of purpose, passion, and fun!

Ten years ago, when I was getting ready to celebrate my fifty-fifth birthday, I came across a story about a younger woman who refused to disclose her age to anyone. She even made family members promise to keep her age a secret. I wondered why she wouldn't want to live authentically. I felt so strongly about it that I wrote an article for The Huffington Post.

Women face enormous societal pressures to maintain a youthful appearance. That pressure is reinforced by various mediums such as magazines, television, and advertisements, often promoted by cosmetic and apparel companies. These industries capitalize on the ridiculous narratives about aging.

As women, we should embrace our unique selves and realize that our age and experiences make us beautiful, attractive, wise, and worthy. Every fine line and age spot is a testament to our life journey and the wisdom we've gained. Would I want to be twenty, thirty, or even forty again? Not a chance. So, instead of "aging," we should say "pro-aging" to celebrate the beauty and grace of getting older.

MS

 

 

Living with a chronic illness can be challenging, especially as you get older. Every morning may bring new symptoms, and it's difficult to know whether the disease, aging, or both cause them. Determining which search terms to find reliable answers, deciding which doctor to consult, and determining whether a symptom requires medical attention can be overwhelming. Sometimes, you may even wonder if a symptom is all in your head.

I've learned the key is to keep asking questions until you feel comfortable with the answers. I rely on credible websites and keep an open mind about complementary medicine. Never stop reading, learning, being curious, and evolving. That's the best advice I can offer.

I want to finish this post by sharing something I wrote that caused quite a stir on social media. It's from my heart to yours. Always.

MS

My smile hides the invisibility of my illness.
It hides the 13,914 days I've lived with this damn disease.
And all of the symptoms and comorbidities that followed.
It hides every piece of crap advice I've been told to "overcome" MS.
And (the sometimes) lack of support and research for patients over 60.
Despite all of this,
I smile because I choose to be intentional about how to live my life.
By spinning gold out of straw.
Joy after tears.
Sunshine after grief.
And gratitude after waking up each day.
No, I am not a Pollyanna or a character out of "Tom Sawyer" who's trying to whitewash the truth of living with MS.
This works for me; at least, it has so far.
I'll be 65 this week, and I've lived with MS since I was 28.
So, I know a thing or two.
I want to tell you this:
For all of you having a hard time with whatever adversity you're facing,
Take it one day at a time. One baby step at a time. There's no right or wrong. And no time clock.
Step through whatever you're facing; there's no going around it. That doesn't work.
And when you're ready, I mean really, really ready,
I'll be right here waiting.
And I hope you'll send me a smile back.
.

Peace to you all, with loving hugs and a healing prayer for good health. xoxo

Author

Cathy Chester

Comments

  1. 60 years of Cherished Friendship Love You
    A bushel and a peck
    And a hug around the neck
    Wishing you many more trips round the sun Cath
    XoxoX

    1. Thanks, my longtime friend! So funny because I still sing that song too.

      We're grounded by all the magical memories of CG and hope we both continue to live healthy and fulfilling lives. I know you're right behind me (Spring!) so here's to us!
      xoxox Cathy

  2. Hi Cathy! Congratulations! you have been and continue to be an inspiration to us all. While your challenges have been enormous and far more than most, your words to live by are good for us all regardless of our health. Thank you. And I can't wait to see where and what good will unfold in your life in the bunch of years to come. ~Kathy

    1. Kathy! Kathy! Kathy!

      How wonderful to hear from you. Your words always mean so much because you are a trusted and inspiring friend. Wouldn't it be wonderful to meet IRL? YES!

      Take good care and all the best wishes to you and Thom,
      Cathy

    1. You continue to be such a light in my life! Thanks for your inspiration and encouragement.

      All the best~
      Cathy

  3. Keep on rockin' Cathy! I was diagnosed in 1989 and turned 64 last October. I also know what it was like in those early years to carry on without DMTs or the internet. Your posts inspire me and cause me to reflect on all I've come through. Thank you for your enlightment. xx Sandi

    1. Thanks so much for sharing your wonderful thoughts! I sincerely appreciate it.

      Take good care and all the best to you~
      Cathy

    1. Thanks so much, Corinne! Always a joy to hear from YOU!

      I'm sending you smiles and love back. Take good care~
      Cathy

  4. Cathy, you make living with this disease so much easier with your wisdom, funny anecdotes, swearing (when it suitable) and just general banter. Happy Birthday beautiful and thank you for being you xx

  5. Hi,
    I just found, discovered you today. I love your energy and positivity. I have been dealing with SPMS for 22+ years now. Am currently 66 years old. Over the years I have found that keeping a positive attitude helps me meet the changing challenges of each and every day. I know that I am fortunate to have a supportive husband who is my best friend and cheerleader on the tough days and with me on the good ones too. We have family that are in our corner so All in All we couldn’t be luckier! I try to be grateful for each and every day.
    For today I am glad to have found you.

  6. Please delete my first comment.

    I just found your Blog today.
    Thank you for your positivity. You are an inspiration to those of us experiencing MS alongside you. Keep your spirit as days go by!!

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Mission
The mission of this blog is to encourage those with MS, to educate the world on what MS is and isn’t, and to help those with MS live a joyful and empowered life.
This blog and the information contained here is not meant to be, and is not a substitute for, medical advice. If you are wondering if you have MS, or have questions related to the signs and symptoms of MS, please contact your physician.
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